Abstract

Introduction: It is essential to embed consumer perspectives into the research journey, including setting the future research agenda. Priority Setting Partnerships (PSP) are a well-established consumer involvement tool. We aimed to determine consumers' 'Top 10' research priorities for preterm lung health by conducting a PSP.

Methods: Our PSP methodology consisted of 4 main stages: 1. Idea Generating survey, asking respondents 3 open ended questions to ascertain their most important questions for future research. Responses were then refined into ~30 main themes which informed the 2. Prioritisation survey, requiring respondents to select their top 10. 3. Consensus Workshop where the top 20 themes identified in the Prioritisation survey were discussed with ~30 community members tasked with selecting and ranking the final top 10, and 4. publication of a final report. Anonymous surveys (Qualtrics, Provo, UT) were distributed via existing networks/social media.

Results: We collated 144 submissions extracted from the Idea Generating survey from which 27 Prioritisation themes were developed. The Prioritisation survey received 150 responses to get the top 20 to take into the Consensus Workshop. These were further consolidated and ranked to finalise the Top 10 (Table 1).

Conclusion: The PSP has been a valuable process to determine consumers' perspectives on the most important questions for future research into preterm lung health.