Introduction: Recovery from respiratory exacerbations is often sub-optimal for multifactorial reasons. Delivering accurate, accessible information regarding patients? condition and priorities of care (e.g. pulmonary rehabilitation) during this time can be challenging. This study developed and evaluated a new web resource to address this issue.
Methods: The mixed-methods study involved 3 phases, underpinned by co-design principles (summarised in figure). Physiotherapist-led tablet-administered pilot implementation occured at an Australian metropolitan hospital network (June-October 2022). Survey feedback was captured upon discharge and one-month later.
Results: 53 items reached consensus during the Delphi. Tablet-based administeration was feasible. 88% of inpatients found the resource useful and 82% reported an increased willingness to participate in pulmonary rehabilitation. Several patients gained new insights into their disease management: ?There?s a lot of stuff in here. Things I thought were a waste of time aren?t?There?s a lot more I can do to help me than I knew?. Website engagement decreased after discharge (42% declined follow-up feedback). Physiotherapists described high satisfaction and improved time and care efficiencies.
Conclusion: www.lungflarecare.com is a new educational resource that can aid the delivery of high quality care for people with acute respiratory exacerbations