Abstract

Introduction: Interdisciplinary case conferences are known to improve patient care in multisystem diseases. Medical imaging in key affected organ systems is integral to effective HHT management. The health jurisdiction of Alberta, Canada has a province-wide mandate for medical imaging storage developed through federal and provincial grants, which has been a tremendous resource to develop case management discussions virtually. This connectivity of imaging provides opportunities to discuss cases from across many areas of the province. We aimed to develop a platform for HHT multi-disciplinary medical imaging case conferences across Alberta.

Methods: Pilot work for HHT imaging case conferences was carried out in Edmonton (2003-2013). A structured approach to medical imaging case conferences was reviewed and optimized to ensure participation by rural areas, respecting appropriate data sharing, privacy legislation and patient consent. The province-wide interdisciplinary framework was deployed in 2014.

Results: Province-wide HHT interdisciplinary imaging case conferences were initially deployed through AHS, and later via a secure on-line platform during the COVID pandemic. Team members include Respirologists, Interventional Radiologists, Neurologists, Geneticists, Hematologists, nurses, trainees and researchers with appropriate patient permission (4 sessions/yr, 2-3 cases/session).

Conclusion: Deployment of province-wide HHT imaging case conferences allows participation by many clinicians, including those from rural areas of the province. Future directions include pursuing inter-provincial / territorial case conferences to facilitate broader outreach of diagnostic and therapeutic expertise in HHT medicine.