Abstract

Objectives:We implement the CF R.I.S.E program in our CF Center (CFC) by making the necessary translations and adaptations. We named our adapted transition program, KF S.O.B.E. (a word formed by the Turkish initials of self care, responsibility, independence, education). Our aim was to understand the baselline characteristics and knowledge levels of our patients to identify education deficits.KF S.O.B.E. includes assessment of baseline knowledge utilizing 11 knowledge assessment questionnaires (KAQ?s). Methods:The Clinical Microsystems QI methodology was used during this translation and adaptation process of CF R.I.S.E. PwCF 16-25 years of age that were followed-up routinely at MU CFC were included. 11 KAQs were applied to the patients via Survey Monkey whatsapp questionnaire within 2 weeks to assess baseline knowledge level regarding CF disease.Results:KAQs were sent to 81 pwCF and 77 of them completed all of the questionnaires. Response rate was95.1%. Mean age of the patents were 19.4±2.9 years old. 42 (52%) of them were female. Mean FEV1pp was 76.3±23.2. 14 (17.3%) and 4 (4.9%) of them colonised with P. aeruginosa and MRSA respectively. 15(18.5%) pwCF are on modulator therapy. Percentage of correct responses given to the KAQs were between 47.9%-68.3%.Conclusions:Baseline KAQ results will guide us to determine knowledge gaps and the need for additional educational support.