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Panel discussion on challenges and solutions for the transition of cystic fibrosis patients to adult clinics

Panel discussion on challenges and solutions for the transition of cystic fibrosis patients to adult clinics

Additional content

Slides

 

European Respiratory Society (ERS) and Turkish Thoracic Society (TTS) Joint Webinar
17 August, 2023 | Online

18:00-19:00 CEST


Chairs: Dr Bülent Taner Karadag (Istanbul, Turkey)
Speakers: Dr Yasemin Gökdemir (Istanbul, Turkey), Dr Susan Madge (London, United Kingdom), Dr Carsten Schwarz (Potsdam, Germany)

 

Adult cystic fibrosis (CF) patient rate is currently increasing due to the novel treatment modalities and early diagnosis with newborn screening. More than 50% of CF patients living in US and Europe are adults and these adult patients are transitioned from paediatric to adult CF centres when they are 18-21 years old. Standardised transition process is available in most of these centres. Despite a standardised program, some particular problems are faced during this complex process. On the other hand, in undeveloped and developing countries adult CF patient rate is still under 50% and most of these centres don't have an official transition program. Therefore, the care of patients is influenced negatively during the transition process.

Educational aims

  • The initiation age of transition in paediatric CF centres
  • How to increase the knowledge and responsibility level of the teenager with CF
  • Learn about the ideal collaboration between paediatric and adult CF team members during the transition process
  • Learn about the problems and solutions in the adult CF centre during and after transition

Topics

1. Pediatric Perspective (Yasemin Gokdemir)

  • The initiation age of transition in childhood
  • How to increase the knowledge and responsibility level of the teenager
  • Learn about the collaboration between paediatric and adult CF team during the transition process

2. Adult Perspective (Susan Madge and Carsten Schwartz)

  • Learn about the problems and solutions in the adult CF centre during and after transition

Target audience:

  • Paediatric pulmonologists
  • Adult chest physicians
  • CF nurses
  • CF centre psychologists

Learning outcomes

Following this webinar, participants will be able to:

  • Learn the initiation age of transition in childhood
  • Learn how to increase the knowledge and responsibility level of the teenager
  • Learn about the ideal collaboration between paediatric and adult CF team during the transition process
  • Learn about the problems and solutions in the adult CF centre during and after the transition