Level of information of patients with lymphangioleiomyomatosis ? room for improvement!

Clinical problems in rare interstitial lung diseases

Chair(s): Clairelyne Dupin, Francesco Bonella

Session type: Poster session

Finn Wilkens

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Diagnostic Criteria Arrangement in Nationwide All ILD Registry with Central MDD in Japan; PROMISE study

Yasuhiro Kondoh

Poster

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Diagnostic testing for GLILD in Common Variable Immunodeficiency: A Systematic Review

Heba M Bintalib

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Natural history and outcome of lymphangioleiomyomatosis in Ireland

Evelyn Lynn

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The European ILD Registry algorithm of self assessment (eurILDreg-ASA): pilot study data on prospective, patient-centered capture of symptom burden, quality of life, spirometry, oximetry and exercise capacity

Ekaterina Krauss

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Radiological and genetic diversity of inherited ILDs revealed within a regional familial pulmonary fibrosis service

Jennifer Dickens

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Clinical characteristics of diffuse cystic lung diseases at a national referral centre

Helen O'brien

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Lower respiratory tract involvement in recurrent respiratory papillomatosis in a multicentric cohort study

Thomas Maitre

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Lung Transplant in hypersensitivity pneumonitis patients.

Carolina Santamaria Valencia

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Clinical and radiologic differences between patients with combined pulmonary fibrosis and emphysema and a matched emphysema cohort

Tal Ardon

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The value of multidisciplinary team meetings in the diagnosis and management of childhood interstitial lung disease among the RespiRare network

Julie Cassibba

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Prevalence of lung cysts are we missing incidental cystic lung disease?

Saher Sultan

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Analysis of Clinical Characteristics of Connective Tissue Disease-Associated Interstitial Lung Disease in 225 Patients: A Prospective Study

Ketfi Abdelbassat

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Level of information of patients with lymphangioleiomyomatosis room for improvement!

Finn Wilkens

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Health related quality of life in childhood interstitial lung disease an ERS Clinical Research Collaboration

Elias Seidl

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Phenotype-genotype correlations of pediatric patients with biallelic mutations in ABCA3 and SFTPB surfactant-related genes

Nadia Nathan

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The diagnostic role of transbronchial lung cryobiopsy (TBLC) in Granulomatous-Lymphocytic Interstitial Lung Disease (GLILD) associated to Common Variable Immunodeficiency (CVID)

Ilaria Menichini

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Drug-induced interstitial lung disease: insights from a referral center

Eirini Zarkadi

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Epidemiology of diffuse interstitial lung disease in children in France: The RespiRare cohort

Nadia Nathan

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Is it possible to predict multisystem Langerhans cell histiocytosis with lung involvement based on radiological findings detected by computed tomography?

Elzbieta Radzikowska

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Primary myoepithelioma of the lungs: a case report

Mila Rose Gonzalez

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The ERS International Congress 2023, Milan

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