Patient journey in progressive pulmonary fibrosis (PPF) in Europe, USA, and Japan: real-world survey findings - Amsterdam 2025

Symptomatic and supportive care in pulmonary fibrosis

Chair(s): Anne-Marie Russell, Tonia Magrì

Session type: Poster session

Patient journey in progressive pulmonary fibrosis (PPF) in Europe, USA, and Japan: real-world survey findings

Lauren Lee

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Unclassifiable ILD; are there unmet needs? Experiences of a district hospital cohort in Southwest England

Andrew Achaiah

Poster

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The multimodal intervention value of respiratory rehabilitation in idiopathic pulmonary fibrosis: a systematic evaluation based on evidence-based medicine

Jing Gao

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Combined ILD and palliative care services improves access to community palliative care

Sandra Green

Poster

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Effects of pulmonary rehabilitation on cough-related quality of life in patients with interstitial lung diseases

Houda Snène

Poster

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IA-Based body composition analysis at T12 in idiopathic pulmonary fibrosis: identifying sarcopenia and its correlation with morphofunctional assessment methods.

Sara Sánchez Martin

Poster

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Prevalence of Sarcopenia and Associated Factors in Fibrotic Interstitial Lung Diseases

Elif Yelda Ozgun Niksarlioglu

Poster

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5-Item questionnaire to assess palliative care need in newly diagnosed IPF patients

Ilaria Bassi

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Heart rate variability differences between perceived relaxation levels in ILD patients

Claudia Gabriela Cortés San Agustín

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QI project: prospective evaluation of the impact of palliative care delivery by interstitial lung disease clinical nurse specialists within a tertiary specialist centre.

Natalie Chen

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Interstitial Lung Disease-specific Fatigue and Breathlessness Programme Pilot: Analysis of qualitative participant feedback

Jessica Mandizha

Poster

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Assessment of HRQoL improvement in ILD patients after LTx using the GR-Scale

Sina Stoltefuß

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Patient journey in progressive pulmonary fibrosis (PPF) in Europe, USA, and Japan: real-world survey findings

Lauren Lee

Poster

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Exploring responsiveness and minimal important changes of the Living with Pulmonary Fibrosis questionnaire in patients with pulmonary fibrosis

Delian Elizabeth Hofman

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The Effect of Chronic Cough on Sleep Quality in Patients with Idiopathic Pulmonary Fibrosis

Özge Oral Tapan

Poster

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Development and validation of the IPF Coughing Severity Scale v2© (IPF CSS v2): a simple patient reported outcome measure (PROM) for assessing cough severity in IPF

Steve Pawsey

Poster

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Sarcopenia affects the efficacy of nintedanib in patients with interstitial lung diseases

Toko Miura

Poster

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Association of sarcopenia with quality of life and progression of disease in patients with idiopathic pulmonary fibrosis

Nergiz Ayan

Poster

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A Weekly Symptom Questionnaire as a Proxy for Symptom Diaries in Acute Exacerbations of Fibrotic Interstitial Lung Disease

Leda Yazbeck

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Every Cough Matters: Six Months of Monitoring Reveal New Insights into Air Pollution's Impact on Interstitial Lung Disease's Cough.

Umberto Zanini

Poster

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Nutritional status and Interstitial Lung Disease: data from two tertiary centers in South Italy

Arcangela Di Domenico

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CDN Connection Issue

The ERS Congress 2025, Amsterdam

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