2006 - Preventing respiratory sequelae in children diagnosed with cystic fibrosis by newborn screening

With the increasing use of newborn screening and the diagnosis of cystic fibrosis in the first weeks of life, researchers have a clear responsibility to develop interventions that will prevent or delay the onset of bronchiectasis that are suitable for use from birth. The Seminar will bring together motivated CF programme directors and leading researchersin order to:

describe the earliest pathophysiological manifestations of cystic fibrosis lung disease
evaluate key early clinical outcome measures
identify critical gaps in knowledge
prioritise suitable targets for randomised clinical trials
address issues of network management and clinical trials design

2006 - Preventing respiratory sequelae in children diagnosed with cystic fibrosis by newborn screening

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Newborn screening in Europe

K. Southern (Liverpool, United Kingdom)

Slides

Accompanying documents

Outcome Measures discussion with a focus on sample sizes

D. Ashby (London, United Kingdom)

Slides

Accompanying documents

Infant pulmonary function - Introduction

J. Stocks (London, United Kingdom)

Slides

Accompanying documents

Infant pulmonary function - Raised Volume Technique

M. Rosenfeld (Seattle, Washington, United States of America)

Slides

Accompanying documents

Infant pulmonary function - Multiple Breath Washout

A. Lindblad (Goteborg, Sweden)

Slides

Accompanying documents

Application and interpretation in RCT's

J. Stocks (London, United Kingdom)

Slides

Accompanying documents

Bronchoalveolar lavage

C. Wainwright (Brisbane, Australia)

Slides

Accompanying documents

Imaging the infant lung

F. Long (Columbus, OH, United States of America)

Slides

Accompanying documents

CT safety issues

H. Tiddens (Rotterdam, The Netherlands)

Accompanying documents

Inflammation, infection and early lung damage

P. Sly (West Perth, Australia)

Slides

Accompanying documents

Antibiotics in infants

A. Bush (London, United Kingdom)

Slides

Accompanying documents

Workshop: Antibiotics

A. Bush (London, United Kingdom)

Slides

Accompanying documents

The Childrens' Oncology Group Experience

G. Reaman (Bethesda, Md , United States of America)

Slides

Accompanying documents

Estimates of sample sizes

D. Ashby (London, United Kingdom)

Slides

Accompanying documents

Medicines for Children - the UK experience

R. Smyth (Liverpool, United Kingdom)

Slides

Accompanying documents

Better Medicines for Children - European regulation, European research networks, Funding opportunities

P. Arlett (Brussels, Belgium)

Slides

CDN Connection Issue

2006 - Preventing respiratory sequelae in children diagnosed with cystic fibrosis by newborn screening

2006 - Preventing respiratory sequelae in children diagnosed with cystic fibrosis by newborn screening

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